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Nancy Mairs Tackles Disability With Grace, If Not Ease.
By Mari Wadsworth
Waist-High in the World, by Nancy Mairs (Beacon
Press).
Hardcover, $20.
BY THE TIME I was 30, I walked with a limp and used a cane.
By 40, I wore a brace on my left leg and used a motorized scooter
to cover all but short distances. Now, in my 50s, I divide my
time between wheelchair and bed, my belly and feet are swollen
from forced inactivity, my shoulders slump, and one of my arms
is falling out of its socket." Meet Nancy's body, the subject,
in part, of Waist-High in the World, a new collection of
essays by the local poet, former UA creative writing prof, and
self-described "cripple" in advancing stages of multiple
sclerosis.
It's not an appealing image to the healthy reader. It's not an
appealing image to anyone, least of all Mairs herself, who drove
across the country, walked city streets, wrote with a pencil,
made love to a variety of men, and was in the throes of marriage,
career and raising two children before she was diagnosed, at age
29, with an incurable dysfunction surrounding her central nervous
system. But the images don't have to be appealing, because the
subject is irresistible.
The subject is, of course, Mairs. Personal reflection and exposition
are what she does best, and she's done them to great acclaim in
books like Ordinary Time, Carnal Acts and Plaintext:
Deciphering a Woman's Life. Here, once again, she delves into
the deeply personal--not just her own life, but that of her terminally
ill husband, her adult children, her mother, sister, mother-in-law
and a host of others--to exhume the unmentionable. In this case,
her topic is the book's subtitle, "a life among the nondisabled."
Oh my, not only a woman, but a cripple, talking about sexual desire,
abortion and euthanasia, the decline of human bodies, the marginalization
of individuals we deem, for whatever reason, unsightly, the graphic
difficulties of using "handicapped accessible" public
restrooms.
It's a risky undertaking, as she herself admits early on; but
it's one that promises not only to enlighten those accustomed
to viewing the world from above, within a zone of comfort catering
to their every preference, but to recognize and perhaps inspire
those for whom public life is more often an exercise in discomfiture
and even despair.
"In a society that prates about, but seldom practices, communication,
the craving to be listened to, heard, understood...is hard to
assuage. And because a cripple, in order to earn a shot at social
intercourse with 'normals,' must never even mention it, an other
who treats disability as a safe topic of conversation offers immeasurable
relief," she writes.
Squeamish readers may balk at Mairs' openness. At first glance
her descriptions of her friends' half-full urine bags bobbing
on the surface during an afternoon swim, of the operation on her
husband's colon, seem indelicate at best, at worst insensitive.
But this lack of censorship, self or otherwise, should be celebrated
for the hard-won battle that it is. That she achieves this not
only with intellectual insight, but also poetic grace, distinguishes
her above others who've written extensively on the topic of disability.
Just when you want to set her aside for awhile, she changes from
pragmatist to poet, taking the "ugly" truth and rendering
it beautiful:
"Here is my troubled body, dreaming myself into life: a
guttering candle in a mound of melted wax, or a bruised pear,
ripe beyond palatability, ready for the compost heap."
No one escapes untouched, and subsequently one of the book's
abiding strengths is the varying audiences to which it speaks.
Clearly, the book is meant for the bipedal and unencumbered, a
group she pointedly reconstructs as "nondisabled," because
"in relation to me, they are the deficient ones." But
Mairs' ability to connect with the universal by sticking ruthlessly
to the personal adds a scope and perspective that the title Waist-High
in the World hardly begins to explain.
Those familiar with Mairs' other works will recognize elements
of her narrative in the first half of the book, which deals with
her private life. The effect, however, is not repetition but familiarity.
The incapacitating migraines that isolated her in her room as
an adolescent, for example, the writers' circle that met monthly
at her beloved Aunt Jean's Boston home, her solitary move, mid-marriage,
into her own cottage--a move which ended some months later with
a bad fall and a few missing teeth: All of these and more make
an appearance in Remembering the Bone House (which, along
with Writing A Woman's Life, by Carolyn G. Heilbrun, should
be required reading for all women navigating the straits of adulthood).
But here they have been newly reinterpreted with waist-high hindsight.
Here they find their footing, so to speak, in the context of a
world filled with obstacles to overcome: the social constructs
that dictate, even demand, that disability confine itself behind
a closed door; the practical hazards of ascending a narrow, icy
flight of granite steps to visit a relative; the realization that
the body is not going to get better, but worse...but that life,
however tenuous, is not by association degenerative. "A life
commonly held to be insufferable can be full and funny,"
she states. "I'm living the life."
By the time we get to the second half, which looks outward to
the lives of other disabled women, discusses the ethics of choosing
death, shares the rewards and pitfalls of travel, we've acclimated
to our new vantage point--we've gotten to the middle of things,
discovering it's quite a bit further from the bottom than previously
thought.
Those learning to live with disability themselves, their families
and friends, any who've suffered the pain or loss brought on by
incurable, degenerative illness or clinical depression, any, in
fact, who've been confronted at some point in life by a malady--mental
or physical--that's set them apart from the comfort of feeling
"normal," will find resonance, and hope, in the experiences
of this ordinary woman who determined she'd have an extraordinary
life.
This is not a "feel-good" book, however, as the author
herself is quick to point out. She prefers the label "feel-real."
"I ask you to read this book, then, not to be uplifted,
but to be lowered and steadied into what may be unfamiliar, but
is not inhospitable, space," she writes.
Mairs succeeds where many others have failed by being not only
an engaging writer, but an engaging thinker. She deftly juxtaposes
the private and public, personal and socio-political, involving
the reader in a dialogue that disallows one from being merely
an audience for some other. She draws you in, thereby eliminating
any chance of the distance, rest assured, you'll try at some level
to create. All this, rendered with humor and style. "Will
my spirits flag as my life goes steadily flatter, in every sense
of the word?" she asks. "Perhaps. All I know is that
I have already slid much further than I ever thought I could bear
to do; and so far, so good."
Nancy Mairs will read from Waist-High in the World
at 7 p.m. Sunday, February 16, at Antigone Books, 411 N. Fourth
Ave. For information, call 792-3735.
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